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 The Aplastic Anemia Foundation
 of America, Inc.
The AAFA offers the following free publications about aplastic anemia and myelodysplastic syndrome in English, Spanish, French and Japanese:
  • Aplastic Anemia: Answer Book
  • Myelodysplastic Syndrome: Answer Book
  • Aplastic Anemia:
    Introduction for the General Physician
  • Families Coping With Hospital Life
  • Communicating to the Medical Care Team
  • A Book for You - Specifically for Children
  • AAFA Quarterly Newsletters

In addition to these publications, the AAFA also offers fact sheets on: The Blood System; Aplastic Anemia and Myelodysplasia Explained; Drug Therapy; and Bone Marrow Transplantation. Audio tapes of the 1994 and 1995 International Patient Conference are also available for a nominal charge.

All of AAFA's printed materials may be ordered in quantities for distribution to hospitals, clinics, libraries and other public information centers.

The AAFA Network of Volunteers are patients and families who talk with others about the disease. If you would like to talk to someone or wish to receive additional information and publications, please contact:

AAFA, Inc.
P.O. Box 613, Annapolis, MD 21404
(800)747-2820

The Aplastic Anemia Foundation of America, Inc. was founded in 1983 with the following mission: to serve as a resource directory for patient assistance and emotional support; provide educational materials and updated medical information on aplastic anemia; and financially support research to find effective prevention and treatment for aplastic anemia.

AAFA is a 501(c)(3) organization solely supported through personal donations and entirely volunteer-staffed with just one paid employee working in office space donated by the Oncology Department of The Johns Hopkins Hospital.

AAFA provides over 10,000 informational brochures sent out free of charge each year to patients, family members and health care professionals all over the world.

AAFA has dozens of nationwide chapters and support groups providing local assistance and resources, medical information, bone marrow donor drives, and fundraising for AAFA research.

AAFA Network of Volunteers consists of over 100 patients and family members who exchange emotional support and resource information with those stricken with these diseases.

AAFA is a strong supporter of the National Marrow Donor Program and was an early leader in the effort to create a Federally-funded bone marrow donor registry.

AAFA funds numerous research studies in aplastic anemia. Each year, several $30,000 awards are given out to worthy research projects encouraging the study of aplastic anemia and myelodysplasia.

AAFA publishes a quarterly newsletter containing stories of how others have coped with disease, information on medical treatments and research, AAFA activities, questions and answers from our readers, and a link to others who are battling aplastic anemia and myelodysplasia.

(800) 747-2820




Last Modified: 7/1/97,
Copyright © 1994, 1995 University of Texas - Houston Medical School, DPALM MEDIC
All rights reserved.